The Great Insurance Scam on My Life

I was sixteen years old when I was inappropriately given a severe mental illness diagnosis. I remember my mother’s response to the diagnosis being far more dramatic than I had felt necessary at the time. She approached me in a state of minor hysteria, proclaiming, “Your father and I will always make sure you have insurance!” At the time, the severity of the grim future that was assumed to likely attach itself to this diagnosis rose to the surface like rapid fire. It was as though the world around me was expanding in size, just bigger and bigger. All the while, I sat in that doctor’s chair shrinking to an almost invisible level, the air unable to continue to be consumed by my lungs. As someone who grew up in a family whose economic status never had to consider insurance and medical care costs once I was around, I was in shock at the idea she believed I would be unable to provide care for myself. As a stubbornly headstrong and independent young woman at the time, I was terrified at the notion of remaining permanently attached to my parents from the perspective of dependency. It was at that time I began to become aware of the extreme uphill pathway I had stumbled upon by means of my entanglement in psychiatric care. This induced a sort of panic state, igniting my desperation to be self-sufficient. What I know now, is that my mother was terrified of my suffering her same experiences. This was to be economically unstable enough early in her marriage where they did not have insurance. Their first child was born while uninsured causing my mother to delay going to the hospital while in labor to the point she almost had a home delivery by accident! For me, it has caused every single decision I have ever made in my entire adult life to surround insurance and the maintenance of it.

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I began to work full-time the Monday after I graduated from high school. This was after a year and a half of tortuous psychiatric overmedication had caused me to almost fail out of high school altogether. Even with my gradually declining grades, my parents had offered a two-week European vacation that I refused. At the time, I was so disgusted with myself and what had become of me that I could not have appreciated that gift. My early high school career was revealing to my potential that at the beginning of my senior year I was accepted to Purdue University. It was sometime during the Spring, while literally barely making it to the finish line of a high school diploma, I had decided to put off going to college. This surrounded the fact that I knew, due to the condition I was in, there was no way I would be successful in my endeavors at that time. Even after making this choice myself, Purdue doubled down through the rescinding of their initial offer of acceptance – done through the usual means of cowardly avoidance that these entities tend to choose: the US postal system. Honestly, I could have done without that punch to the gut, solidifying I was not worthy. Still, I pressed forward, optimistic in my role as a dietary aid at a nursing home, a role I loved. There were times I entertained attempting to pursue the leadership there – sometimes I still wish I had. This position was not one that allowed me to fulfill the expectations of the collegial driven family I was raised and left me feeling like I needed to achieve more.

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From here, I became lost in the balance of needing to have insurance and wanting to have freedom and to pursue goals. After being raised in a small town whose roots run back four generations on both sides, I have always felt this pull within me to be on the go. I was forever held back by that nasty need to be insured. To be honest, I didn’t even know why I needed it really. It was just embedded in me that this was something one could not live without and I desperately wanted to be on my own without assistance. I attempted a brief move to a small nearby metropolitan where I would be able to find work and attend an off-chute location of a larger university. My work scheduled called for me to work late hours making attention to my studies impossible enough that I dropped out – but I kept that insurance, though. From this point, I went to work for my father who was able to provide me insurance though the coverage was lacking as it has tended to for those working for small business owners such as he. During this time, I attempted to go back to school multiple times having to drop out each time. I jumped into an impulse marriage and became pregnant within 6 months of that – all the while maintaining numero uno, you guessed it, insurance! During my time bearing child, I went to weekly therapy without medication, getting to the start of the roots of my neurodivergence and severe maternal relational trauma. It would be a post-partum event in 2010 involving the complete subjective removal of my civil rights that would cause me to a.) double down on my conviction and b). realize how small I would have to become to prove myself once and for all. It was during my pregnancy I became aware that an insurance company is unable to consider a past diagnosis as active if one does not receive treatment for that diagnosis in seven years. For the record and others sake – I do not know if this is wholly accurate, it was just something I read and latched ahold of and as I have said, give someone with OCD traits something to hold onto with a passion and forget it!

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It was after this point, without medication and with a strong will to make something of all I’ve been through, that I was finally able to return to school successfully. After four years of year-round schooling as an adult commuter student with a full-time job with benefits, it came time to for graduation. Of course, I spent my senior year pregnant and expecting to have my second child the week before finals of my last semester. It was not looking like I was going to be able to continue to hold my family’s benefits, luckily in time for the Affordable Care Act to be rolled out. So, I gave it a shot. To say this was the worst experience I have had with insurance amongst the horror stories would be an understatement. The initial application process wasn’t difficult, there really just weren’t anything but high-deductible plans that were fairly expensive to choose between. While that was the sole year of my participation in this product, I have not heard a difference in the results since then for what is available. The worst of what I would experience wouldn’t happen until the actual birth of my daughter – a qualifying life-change event for any insurance carrier to be able to make insurance changes. Usually this means a call to member services and the providing of the facts. Unless, of course, that provider received their original information through the government—then the change has to be made through the government. Well, let me tell you how disastrously they handled the onslaught of applications received which had exceeded any lawmakers planned expectations. They handled their overload by simply deleting the excess of applications they presumed they would not need to hold on to. After the early May delivery of my beautiful baby, I spent countless hours through the very last week in December attempting to get my daughter added to my policy. Of all the things I know myself to be, connected is one of them. Now, this has not gotten me much social fulfillment overall, however it has allowed me access to knowledge and professionals outside of the reach to the typical person. Because of this, my then insurance agent enlisted the support of a local Senator who reached out to Ben Shapiro who was willing to hear out our situation if I would bring my infant on the show with me. I couldn’t let myself do this as our arguments were not the same. His, a stereotypical outrage against government healthcare. Mine, a disagreement with lawmakers ability to make and enforce policy without having to present a plan on how to get there. My opinion on healthcare – no one should face bankruptcy due to a health issue. No one should fear going to obtain care due to the financial predicament it will put them in. No one should make every life decision based on whether or not they have insurance. I ended that year with an evening phone call from the White House to add my daughter successfully to the policy. Of course, it was never applied appropriately, and this cost my family thousands of dollars out-of-pocket that we did not have to spend.

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After this year, I returned to full-time work and the maintenance of my family’s benefits. This is the position I have remained bound to for nearly a decade. It was during a health emergency that I felt forced to leave my corporate position. This crisis was really the final straw in a months long string of events and so I had already taken the steps to understand what my exit could look like. This included first priority of course that my husband felt up to the responsibility of holding our family’s insurance for the first time in our 16-year marriage. He had touched base with his HR to find out the process. I had reached out to understand the outlines of my tuition reimbursement contract. My plan had been to drop to a PRN level position and slowly phase out in the hospital that had kept me miserable. Instead, I was strung along in the full time BS position I was overqualified to start and now with an MSW and no more pay. It was in the middle of a one in a million near-death reaction to the flu shot that I would be unable to care about much more than ridding myself the corporate affiliation which had plagued my life. It was smack in the middle of this I realized the significance this need to hold insurance had really held for me. This was that it kept me reeled in to the point of preventing my wild side from taking me off the deep end. The actual care it availed and costs associated with it were null and void as it would happen.

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The Adaptable Autist and Relational Trauma in Rural America

Much of my awareness and expertise on relational trauma surround having experienced such complicated personal levels while at the same time having direct exposure to multiple generations back, enabling ultimate understanding to its sources. It doesn’t hurt that in addition to the life I have lived, I was born with unrecognised autism. What I find interesting about myself is that I am also incredibly adaptable. The trait I was referred to have excess of by two Clinical Psychologists I studied under during my undergraduate studies was that of resilience. Being ever adaptable, by nature, goes against the fundamental concepts that the psychological community has approached autism spectrum disorder. This has been the assumption that those born with this rigid thought process involving serious sensory processing complications are incapable of change. No wonder so many have fallen through the cracks. My situation has been difficult with providers in large part due to my brain being what I have referred to as this “weird Meredith brain mapping” and now I’ve been left to sort through it on my own. Many of the clients I worked with who experience severe mental illness share a similar frustration of not knowing what or how they are supposed to be. This includes a misunderstanding of what provider’s expectations of them are and wishing it were clear cut.

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Back to how this incognito condition has contributed to my proclaimed expertise in mental health. Honestly, it feels like I have been the ultimate social scientist since I was in second grade. I may not have great self-awareness in the moment, but I have amazing reflection skills and when I am provided the information needed to make sense of a situation, my brain can accept it. With practice, I can often replicate the anticipated behaviors for prescribed situations. I did not have anyone but my “inside voice” helping me to make sense of the world, no wonder I’ve had a bit of a learning curve to get to the point I am. A significant reflective observation of mine concerning talk therapy and its potential ineffectiveness surround the detrimental impact I feel it is having on the adaptable neurodivergent. I say this because for almost a decade I underwent traditional CBT to accompany severe overmedication. Now that I have become familiar with the manner in which my mind works through the use of my own education and then going to a therapist who also struggles with some neurodivergence, I seriously believe that I spent that near decade being unknowingly gaslit by neurotypical providers. I truly believe this has contributed to the severity with which my thoughts can twist. Part of the blame for some of my nonsensical word patterns of course can also be attributed to being higher intellectual. This surrounds the fear and paranoia instilled to do with the importance in avoiding plagiarism – oh the sentence structures I have come up with to avoid this!

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I describe us as “living in a world of memes”. It’s such a simple way for someone to be made aware they really are not alone – if there’s a meme about it, surely more people are experiencing it! I think a favorite of mine was a hot take on the neurodivergent community. It is very often stated that those with ASD are unable to identify social cues. This meme presented the hot take that the neurodivergent brain does understand social cues, what it cannot conceive are inauthentic social cues. Yes! This is it. This is everything my life experiences have added to. I grew up liking rules and liking to follow rules. But when you live in a world of contradicting rules in a “do as you’re told” household – this becomes very challenging. Rules in terms of order: 1. Church – obviously church which feed right into 2. Parents – who you obey at the fear of the wrath of God. Somewhere in there would be school rules, inside the house versus outside the house social rules which seemed extreme coming from a reputable family of the community with image to uphold. Then there were the rules on my dad’s side of the family who came from the top socioeconomic class which reeeeaalllyyy didn’t match the rules on my mother’s family from the lowest financial class. These were all rules that were nearly impossible to manage growing up. I spent a lot of my time inward, trying to figure out how to navigate social situations – I have become thankful that I have grown to love myself and time with myself as not to take these difficult interactions personally. It was through living on the inside that I have really been able to make connections to generational trauma and how it has impacted those I love and want to love in their own relationships.

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When I went back to therapy on my own terms in June of 2019. I remember acknowledging that none of the stages of development I have gone through matched any traditional sense of growth. Yet here I am, plopped into adulthood, just expected to know how to manage it. Of all the rules I have had to make sense of, there is one that I did not expect to encounter and that is not readily identified in any research I have seen of yet. This is the observation that I am way too small town for the city. In presenting this to a former manager, she said she didn’t think she’d ever heard this. The thought really became pronounced midway through my Master of Social Work program who paid little to no attention to rural community work. There was a specific work by a Black male author done as a follow up to previously breakthrough A Framework for Poverty which had been done by a white women. The Black author, Kunjufu, laid out different rules by which one had to live in various social classes. I see opportunity for this to be expanded on to include rules of an impoverished rural community whose framework is as different. What I can say of myself is that living three decades in a population of less than 20,000 and then moving to the suburbs has left me in disgust. I am of a collectivist background to an environment who has not been inspired to embrace this at appropriate rates. I come from the rural America that could unite to get through times of suffering together under self-governance. Now, I am surrounded by those who offer shallow levels of concern and support. It is so clear to me that the suburban life is filled with those who’ve fled various attachment conflicts. Whether it was the systemic poverty typically fled by the urban population or the increasing familial abandonment through avoidance in leaving rural homesteaded territories – this area is filled with the superficial and the largely unhealed. It is so individually driven that no wonder they found hope in the unity of COVID19 pandemic.

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 In an overall assessment of those with neurodivergent traits, it seems unfortunate that the stillness of rural life has gone overlooked in its potential for providing environment for healing. There is much commotion and differing energies moving about the city and suburb that the country could meet with solace. As interesting to me is that the rural environment is one that is supportive to small business and participation in community care, once you’ve been accepted. This is an area which can support work while accommodating symptom needs. If we were to turn our investments toward creating treatment environments in these small communities, we could see more progression towards recovered states and less continued medical model needs. The neurodivergent mind is entrepreneurial in nature and is why so much of the midwestern small towns were built of stabilized yet unique minds. These areas should be seen as collectivist in nature and more family-based models of treatment are needed. Behavioral psychologists have immense room for opportunity as it relates to approaching generational relationship trauma in these areas where primary dating concerns were seen as finding a mate who isn’t related. As it is, the rural neurodivergent is being left behind, while the rural landscape offers the most potential for hope in alternative treatment methods.

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Challenging the perspective of treatment for trauma bonding.

The thing about treatment for substance use disorder that is most key in my opinion is this idea of changing your people places and things. For those who aren’t aware, this is a common statement made in SUD treatment. What it means is that for you to be successful in your ability to not fall back into patterns that led to substance use, you must change the environment around you up to and including who you engage in spending time. Scientifically the idea of changing your people places and things really has to do with creating opportunities for the development of new neural pathways. The more opportunity to practice the habits developed before encountering past triggering effects increases potential success to continue participating in these new behaviors. In addition to the element of peer and community models I have written about previously, this is one of the essential contributing factors SUD treatments and its current potential model to be able to display rapid observable positive outcomes.

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A former manager I worked for was known for his affinity to the substance use population. In a raw moment between us, he admitted the reason to be the ability to see real change that is not usually expected with any level of traditional mental health treatment. This was really a fairly sad admission by a professional to me as someone who has struggled severely with mental illness and come out the other side. I won’t say I haven’t had my fair share of substance misuse to accompany my symptoms of mental health struggle. I have never struggled with any one specific substance that I could not recognize its ultimate damage and been able to quit on my own. I have repeatedly sought out something to make sense of the severe generational and developmental trauma I experienced. I went through more than seven years of incredibly poor mental health treatment, primarily by means of overmedication. Never did I do and intensive outpatient, never a residential, not more than weekly meeting with mediocre therapists at best, for years. Given the consideration to what treatment there was for me, how could one expect drastic change of any kind to be able to occur?

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With consideration to couples who have most likely engaged in some form of trauma bonding, I have the utmost empathy. It is pitiful to work on the admissions end of substance use treatment. I cannot tell you the dire needs for family and couple models of treatment to be introduced to mental healthcare. It would be so common for a couple to want to admit to a form of rehab together. The staff would snicker behind closed doors in the most merciless display of misunderstanding possible. For me, as a sufferer of severe relational trauma and neglect, I understand with every part of me the chemical impact of a dysregulated attachment style. It is incredible to observe this opioid epidemic as it is such a clear display, in my opinion, of the depth of the mother wound. When we consider the Oxytocin literally inspires life through the initiation of labor, it is easy to recognize what we all want and have always wanted is to be loved by our mothers. This is the primary neurotransmitter involved in trauma-bonding. These couples who have infused to one another through fulfilling what the other lacked deserve more opportunity for their love to be invested. Currently, the professional field of healthcare is largely filled with neurotypicals and empath enablers. This means almost the entirety of the field in treatment to those in need lack understanding of those they are serving’s needs. And I want to be very clear when I say –what your provider looks like has little to nothing to do with it. For me, a white, middle-class American, every mental health provider I went to that got it wrong with me was also a white, middle-class American. It was not until I had a provider with an overlapping diagnosis to my own complex diagnosis that I was able to make real progress.

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It was at a recent doctor appointment visit for my older child that I observed the front desk, scheduling staff. Upon hanging up the phone, the front desk women cackled about this couple needing to be scheduled with their appointments at the same time. “I’d never be that codependent!” declared one – as if the reason for this couldn’t be the need to save money on gas. Also, if I was someone knowingly struggling with codependence that healthcare facility is now the last place I will seek assistance for this, if I ever do at all. These are the things that people just don’t consider. As if that same codependence wasn’t hijacking the same neural system that an opioid withdrawal does—there is a serious lacking of compassion. If you consider it from this framework. This means that each time a person with relational trauma experiences a trigger, they go into immediate withdrawal in a similar way that a person who just received Narcan would be removed from their state. This provides insight to the severe irritability experienced when a codependent person has an adverse behavior. In an alternative approach to families with codependency there need to be push and pull working towards challenging the production of new behavior by all involved. Perhaps, this looks like creating more opportunities for new neural pathways to be created. This may look like big move as a family. This may look like forced engagement in new activities. What I know when it comes to family mental healthcare is something has got to give from a macro level perspective. All this individuality has caused us to abandon systems in need of much repair. As it is, there is little opportunity for this to occur. As for my own life, I am amidst the largest changes of my life. I am choosing to take a chance on myself, my family, and my faith that something will come out of all we have gone through in our commitment together.

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#alternativeswithcare #melodramaticmeredith #dearmelodramaticmeredith #holisticcounselor #holisticcounseling #alternativemedicine #mindbody #mentalhealth #mentalhealthawareness #suicideprevention

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#msw #socialwork #psychology #selfcare #selflove #communitycare #communitylove #mutualaid #neurodivergent #recovery #equality #equity #inclusivity #antioppressive #hope #supportsmallbusiness

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